Trying and Failing To Do Good: The Hard Lesson Sia Is Learning About Responsibility for False Representation in Creative Work

There is something uniquely hurtful about being mocked. In Sia’s attempt to empower neurodiverse people, she’s hurt and offended many. Was she wrong to try the way she did, or is the world just trolling her?

For those that don’t know about the controversy swirling around one of the most famous pop stars of the day, Sia, I’ll give you the spark notes. Sia recently released a trailer for her upcoming movie, "Music," which features Maddie Zeigler portraying a nonverbal woman on the autism spectrum, named Music. Ms. Zeigler is not, in fact, on the autism spectrum, nor is she considered by the public to be neurodiverse. This has been the root of the controversy. While some might argue that Ms. Zeigler is merely “acting” as a nonverbal autistic woman, others might consider it “pretending” or even “mocking” those with the most extreme cases of autism. 

Why Does Autism Community Care?

There are many dimensions to measure the spectrum of autism. Most notably, individuals on the autism spectrum demonstrate social interactions, communication abilities, and behaviors that differ from neurotypical individuals of the same age. Adults on the autism spectrum may experience barriers in multiple areas, such as accessing quality healthcare and finding sustained employment and are significantly more likely than the general population to have many physical and mental health conditions. 

While the trailer is very brief and does not provide much insight as to the dynamic between Music and her friends, people have already been speculating that the film will portray the autism community in a negative light. Perhaps the most hurtful aspect of what people do know is that Sia did not employ someone on the autism spectrum to play the lead character in her movie. 

Screenshot from Music's trailer

Where Is the Line Drawn?

From Sia’s perspective, I can understand the frustration that people who have never seen the movie are already dismissing it as “hurtful” and “tone-deaf.” Regardless of the project, budget, or timeline for a project, there are always limitations. Sia has argued that her movie had only the best intentions (and that may well be true) but that she needed to work with someone with advanced skills in communication and acting to achieve her vision for the film. She asserts that if she chose to cast someone with the degree of communication challenges as Music had, the movie would not have been possible to make. While some may find that this is a perfectly legitimate argument to make, her extreme and patronizing reactions to the public’s negative response have only made matters worse for her. 

From the perspective of the autism community and neurodiverse community more broadly, why not hire a neurodiverse actress? Why not an actress on the autism spectrum? There are many actors and actresses on the autism spectrum that Sia could have considered. I can see from their perspective that it’s insulting to hire someone so distinctly different from the character they’re intended to portray, that an actor or actress who does not have the lived experience of someone on the autism spectrum is not capable of portraying that experience accurately, respectfully, and tactfully. 

The idea that Sia has tried to make a movie to convey the idea that the world can be a safe, accepting, and loving space for people on the autism spectrum is a noble one. Unfortunately, she has failed to authentically and earnestly engage with the community that she aims to help with her movie at all phases of this project — research and development of the movie — and now in promoting the movie. 

James Madison's picture

Madison is a mathematician turned statistician based out of Columbus, OH. He fell back in love with film years ago while living in Charleston, SC and hasn't looked back since. In early 2019 he started a website about film photography.

Log in or register to post comments
38 Comments

It's a movie, yes, but how is this related to photography?

A movie is a very fast series of still pictures (photographs) that give the impression of movement. Considering camera makers have, in their infinite wisdom, blended still photography and movie photography into one device, the article, I suppose, has some relevance.

Fstoppers caters to photographers and filmmakers, right? A story about a short film and its impact seems pretty relevant to the site and our industry in my opinion. But that's just me.

True, but couldn't you say that for just about any movie?

Yes, I think so. I'm honestly surprised there aren't more articles on this site focused on filmmaking.

I'm on the spectrum and I don't give a flying f---. She can cast whoever she wants.
People need to stop looking for things to be constantly offended about. Get off Twitter and get a life.

Dustin Hoffman, Rain Man. Fuck off.

Yeah yeah but we've come a long way and learnt a lot from those days. It's the evolution of social awareness.

You mean " social greivance mongering".

It's called "Acting" for a reason.

Following your logic, unless someone is playing themselves, then there will always be a reason to be offended, by the fact that they are not the group/thing they are "pretending to be".

Get a grip people. Just say'n.

There's a new TV show called 'The Highway'. It's about a serial rapist/murderer that's a long haul truck driver. Some trucker's association is unhappy because the show portrays a truck driver as a bad guy. Who would have ever though that some truckers have joined the ranks of the offended, the snowflake brigade? Good grief!

Think about the serial rapist/murders that feel misrepresented too. Everyone has feelings!

Did they use an actual serial rapist/murderer, or did they use an actor? How could they accurately portray a serial rapist/murderer if they didn't even use one?

The thing is there are many autistic actors available. Why not use one? Win win. Not everything is as black and white as your comments convey.

But are they good actors?

• About one-in-five U.S. adults say they use Twitter, a share that has remained consistent over the past several years.

• 19.1% of U.S. adults experienced mental illness in 2018 (47.6 million people). This represents 1 in 5 adults.

"The idea that Sia has tried to make a movie to convey the idea that the world can be a safe, accepting, and loving space for people on the autism spectrum is a noble one"

It is also a naive and delusional idea. All throughout my autistic life I have face exclusion, discrimination and prejudice. Humans, by their very nature and history, are discriminatory and prejudiced creatures. Generally unwilling to accept those who fall outside their programmed social mores.

I'll watch the movie with an open mind and then draw a conclusion.

It's arguably a legacy reflex from when we was forced to hunt and live as social groups, people hate anything that's not the norm. If you've are anything different from the 'accepted' norm you're automatically marked as potentially dangerous to the pack as a liability.

Then you have now modern social media constantly bombarding us with messages of what's the 'perfect' person creating a indoctrination process to exclude anyone that doesn't fit that narrative.It's a system that's exclusionary by it's very nature because most people say look at my life it's better than yours.

Maybe people should see the movie first?

No, we need to get outraged first, so we can view it later with confirmation bias in place. Or maybe just not see it because we already made up our minds.

It’s a movie trailer, so video cameras were involved. And there were hairdressers and makeup artists involved, and on-site catering. But the ‘controversy,’ if you can call it that, isn’t about photography, or hair and makeup, or catering. It’s about casting - the directors cast an actress to play something she wasn’t. You might think that’s pretty much the definition of acting, but some people got upset about it. But from a photography point of view it makes precisely zero difference: the lighting and exposure would have been the same whoever they cast.

Did you know that the tie fighter pilots in the first star wars Movies where just Actors and not real tie fighter pilots? George lucas got alot of backlash from the tie fighter pilot community in the late 70s for doin that

It appears to be well lit. This concludes my interest in the contreversy.

Underrated comment haha

OK, so where do you draw the line? If you want a murderer in a movie do movie makers have to look for convictied murderers to play the part. What about the movie "Slience of the Lambs"? Should Anthony Hopkins have been replaced by a real life cannibal? And don't get me started about an actor playing a character from a foreign country.

Actors and Actresses should be able to act without recrimination. That's their job.

In the times of Shakespeare female roles were played by men or boys. Women didn't appear on stage until after the Restoration of 1660.

I am going to watch the movie because I want to see how young Maddie pulls of the autistic role.

Not trying to be confrontational or anything, but I'm gay and on the autism spectrum and it just doesn't feel right to have autism be compared to homophobes, murderers, rapists, and racists, as if they're even remotely comparable. I'm not outraged by the film, to be clear, and I see the point people are trying to make with this comparison, but it just isn't sitting right with me.

She is trying to demonstrate the flaw in the author's logic by taking the author's logic to an extreme. Her argument is not attempting to equate autistic people with rapists. I think you should read her statement again, because you do not understand what she's saying.

I read the comment multiple times. My opinion and feelings remain the same.

Did you miss the point by a mile? He's not comparing autistic people with murderers, etc. He's saying it's ridiculous to expect every role to be played by a person who actual IS what is being portrayed.

Michelle, you don't need to gaslight my feelings on this. I wont be validating your comment with any more of a response.

It’s funny how, in the last decade, people have become offended by literally anything and everything. Apu in The Simpsons being voiced by a white guy was seemingly OK for over 25 years but in recent years is now unacceptable.

Also, if people aren’t offended by something trivial, they’re complaining their own demographic is being marginalised by the ‘PC brigade’ or some other such rubbish. In other words people always looking for outrage.

Two questions:

1. How accurately did Zeigler portray her character's neuroatypicality?
2. Is getting any neuroatypical actor good enough or does it have to be one with the very specific neuroatypicality the character is presented with? Can you cast a verbal to play a non-verbal if they're 80% consistent otherwise?

I imagine the # of actors that meet the autism community's definition of sufficiently representative is low. What if that actor just isn't suited to the part, then what? Competent & reliable working actors have scheduling conflicts all the time, and films have deadlines.

If Zeigler did her job, played the character authentically, and inspired the audience to be more welcoming to neuroatypical people Sia succeeded in delivering her message. That's a win and hopefully the film will survive the backlash.

The problem with representation in film is acting isn't easy. It's demanding craft to learn and execute well. If there isn't a qualified actor in the demographic that's being portrayed you're going to have to choose the best actor outside that demo.Otherwise what, just don't make the film? I don't understand why people assume there's an actor in said demo always automatically available for every film that needs them.

Anyway, the trailer looks pretty good. Worth the watch I reckon.

Pardon my age and non wokeness, but who is 'Sia'? Never mind, I looked her up. Meh.

Andy Day, is that you?